Who is N=1 Collaborative (N1C)?

We are a global society of researchers, clinicians, patients, and advocates working together to advance the field of individualized medicines for ultra-rare diseases. To learn more about our mission, visit www.n1collaborative.org.

Our work & community

Our goal is bold: to make individualized medicine routine. We do this by sharing knowledge, data, and resources—and by building a global community committed to collaboration.

Our online platform, Connections, is at the heart of that community as a shared space where members exchange insights and support one another across disciplines.

From bench to bedside to bedtime stories, every voice matters. Here’s what being part of N1C can offer:

1. Scientists and Drug Developers: Collaborate across disciplines, share resources & methods, and build lasting partnerships.

2. Clinicians: Stay informed on the latest in individualized care, learn from peers treating rare conditions, and connect with researchers and families to support individualized treatment efforts

3. Patients, Families, and Beyond: Learn about individualized treatments, share your story and find others on a similar path, and connect with experts and advocates to ask questions.

How do I become a member?

Step 1: Register

Click “Access” below to create your account and start exploring the platform.

Step 2: Become a Member

Make your support official anytime inside the platform and unlock access to additional platform spaces as well as discounts to our annual meeting.